Paul Lima - MS & ME

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Every Thing You Need To Know
About Multiple Sclerosis
For MS Warriors, their Family, Friends and Care Givers

If you are newly diagnosed with MS, know someone who is, or if you are a partner or caregiver of someone with MS, no doubt you have questions about MS. Everything You Need to Know About Multiple Sclerosis has answers. It may not actually have everything but it answers questions about what is and why is MS, different types of MS, various MS symptoms and medications. It looks at MS and diet, exercise, smoking (cigarettes and marijuana), drinking, relationships, sex, pregnancy... In addition, several partners of MS Warriors chime in about their experiences. View
the table of contents (So what's in the book) below.... In short while this book may not have everything you need to know about MS, this is a comprehensive book about MS.

Buy print or ebook using links below (coming by the end of 2018 or early 2019).
If you want to be notified book is available, email msandmebook@gmail.com
using subject line "Everything MS notice".

Introduction to Everything You Need to Know About Multiple Sclerosis

My name is Paul Lima. I am an MS Warrior. That is what people with MS call themselves as they battle this insidious disease. Three to four million of us are affected by Multiple Sclerosis (MS) worldwide. I have had MS since 1998, for over twenty years as of the writing of this book. There have been years when it has pretty much knocked me on my butt. Years when it has given me strange and bizarre symptoms. Years when it has disappeared to wherever MS goes when those with Relapsing Remitting MS go into remission and, for the last four years, it has knocked me on my butt and kept me from doing all but walking my dog and teaching some online writing courses for the University of Toronto.

But during the 20 years that I've had MS, I've learned a lot about this disease. More than I've cared to learn, but it can pay to know your enemy.

I am not a doctor, so this is a layman's guide to MS. I have researched and verified every fact presented, to the best of my ability. And I hope the writing makes the facts presented clear and understandable. Hopefully the fact that I have been a freelance writer, author and writing trainer for the last thirty years helps me do that. (If you want to know more about me, and what I do—or try to do as I deal with my MS—go to paullima.com.)

But this book isn't about who I am and what I am personally dealing with. It's about everything (or almost everything) you need to know about MS. From first inklings, or the fact that something strange is going on, to the diagnosis, to what MS is and why it is, to the various types of MS, to medications and potential side effects, to diet, exercise and depression, to relationships, and more. My hope is that this book will help you understand this chronic disease--to understand that MS is not a death sentence, but it can have a detrimental impact on your physical and emotional well being. And to understand that MS is different for everybody diagnosed with the disease.

That's right. Different. For each MS Warrior. Just like every snowflake is different, there are different types of MS, and there are different symptoms for each person living with MS. But just like every snowflake is made from frozen water, MS Warriors, as we shall see, have similarities too.

I wrote this book because, quite frankly, I was surprised at how naïve many of the questions being asked by those with MS were, and how frightened many of those newly diagnosed with MS seemed to be. Then it occurred to me, after twenty years of dealing with this disease, I was an MS veteran. Twenty years ago, my questions were just as naïve, probably more so. I was just as frightened, even more so.

It's not that I now have all the answers. Not by a long shot. Nobody has all the answers. Nor am I now a big, brave guy! Not at all. But I am no longer new to MS, have a bit more understanding of this disease, and am a little more laidback about it.

Don't get me wrong. MS still scares the crap out of me. I've just learned how to breathe and remain calm in the face of my fear—most of the time.

Yes, your doctors have information. But they can only dispense information in twenty-minute sessions once or twice a year. Unfortunately, much of it, especially if you are newly diagnosed, goes in one ear and out the other and leaves you with more questions than answers. Not the fault of the doctors (in most cases). It's difficult to absorb information when you've been given a sentence (formally called a diagnosis) that you really don't understand and that scares the crap out of you.

Yes, there is a lot of information online and I encourage people with MS, and their family members and caregivers, to read about MS on legitimate websites (see my list of online resources at the end of this book). I also encourage you to join in-person support groups (check with local chapters of MS societies for information about support groups) and online support groups such as Facebook MS support groups or myMSteam, the social network for those living with MS. At the same time, it seems like there was room, maybe even a need, for a book that catalogues just about everything one needs to know about MS.

With all of that in mind, if you have MS, I hope that it is not severe and that this book gives you some sense of what you might expect. If you are a family member of someone with MS, or caring for some with MS, I hope that this book gives you a greater sense of what the MS Warrior might be going through. And if you have severe symptoms, I hope that this book helps you and those around you understand what you are dealing with.

Suffice it to say, while many MS Warriors have decent days, weeks, months, and even years, they still have a bizarre disease that can manifest itself in different ways at any time. Whatever your case, do not let MS define you. You are not your disease.

With that in mind, I hope this book helps you feel more prepared for what may come--although I hope it does not arrive for a long, long time.

Paul Lima
November 2018

So what's in the book?

1 / Introduction

2 / What Is MS?

3 / Types of MS

4 / Why Is MS?

5 / First Inklings of MS

6 / Doctors & Diagnosis

7 / MS Symptoms

8 / MS and Medication

9 / Grazing in the Grass

10 / To MRI or Not To MRI?

11 / Living with MS

12 / Life Hacks and MS

13 / MS and Exercise

14 / MS and Diet

15 / MS and Depression

16 / Communicating about MS

17 / Healthy Partners of MS Warriors

18 / Sex and Pregnancy

19 / Missing Aspects of Life

20 / MS Is Not A Death Sentence

21 / List of Online MS Resources


Paperback*
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  • Amazon UK: 
* All prices subject to change.

Book coming by the end of 2018 or early 2019. If you want to be notified when the book is available, email msandmebook@gmail.com
using the subject line "Everything MS notice".

eBook*
  • Kobo:   (epub)
  • Chapters-Indigo.ca:  (epub)
  • Amazon.com:  (Kindle)
  • Amazon.ca:  (Kindle)
  • Amazon UK:  (Kindle)
  • Lulu.com:  (epub)
  • Lulu.com:  (PDF)
  • Apple:  (epub) 

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